Why I'm Running
This event is special to me as I will be running not only for a special wish kid, but also in memory of my brother Shawn who passed away of Cystic Fibrosis at the age of 26. My brother was on a waiting list for a lung transplant when he died. He always gave me encouragement, support and was truly my hero. My brother didn’t have the lung capacity to “RUN” or do physical activities. Every time I run, I do it because he couldn’t and this event will be one of the biggest physical and mental challenges I have ever endured. Every mile I run (all 24) and breath I take I’ll be thinking about my brother as well as the special wish child I’m running for. I love physical challenges and this by far will be the most rewarding! I’m excited to take this challenge on with my 10 year old son (Shawn - named after my brother) and raise money for a special child for a special wish!
About Team Addie

On May 1, 2019, an urgent visit to our pediatrician changed our lives. Addie had been experiencing symptoms a few weeks prior that signaled her pediatrician to order an emergency MRI, which led to the discovery of a mass on her cerebellum. We were sent down to Rainbows UH for Addie to undergo another MRI, which confirmed the discovery. Over the next two days, Addie underwent 2 brain surgeries. The second surgery on May 3, 2019 was to remove the tumor. Preliminary tests performed that same day revealed that the mass was a malignant tumor, and based on the symptoms, size, and placement, it was determined to be Medulloblastoma. The neurosurgeon was confident that he would be able to remove as much as he could, and was able to perform a successful surgery that left a small area (1mm to 1.5mm) connected to her brainstem.

After her recovery from surgery, Addie underwent surgery to place her mediport, a corrective eye surgery, 6 weeks (equivalent to 30 treatments) of radiation, another eye surgery, a g-tube placement, hundreds of pokes, 2 lumbar punctures, and several scans. A few weeks after radiation ended she began her journey to complete 9 cycles of chemotherapy, which was spread out over roughly one year.

During all of this, Addie went back to school full time as a third grader at Lake Elementary in August of 2019, just 3 months after brain surgery and being diagnosed with brain cancer. The motto at our house was, and will always be, “We will worry about the cancer, you worry about being a kid”, and Addie has done just that. She continues to be a social butterfly and loves being at school with her friends. During the 2019-2020 school year, Addie only missed 46 days of school. Even on chemo cycle admission days, Addie could be found at school, even if just for an hour in the morning, so she could attend her student council meeting where she was a class representative.

As many cancer parents will tell you, even though the treatments have ended, this really has no end. Cancer will be a part of her life for years to come. She will have routine exams, scans, and blood draws. The side effects from chemotherapy can develop over time, and she will always be susceptible to secondary cancers. But no matter what the future holds, Addie‘s big heart and huge smile will never disappear, and her strength and determination will continue to be one step ahead of cancer.

$1,014.00 of $700 goal

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Recent Donations

Anonymous
1 month ago

Thank you Shawn and Shannon!

Kevin Foster
1 month ago

Go American Ninja Warrior!

$50.00
Kelsey Hruska
1 month ago

You go girl!

$50.00
McGinty
2 months ago
$35.00
Lindsey Maurer
2 months ago
$35.00
Martha Hollingsworth
2 months ago

Good luck!

$25.00
Burress family
3 months ago
$24.00
Kelly Fiffick
3 months ago
$48.00
Stacey
3 months ago

To my wonderful friend with a beautiful soul. In memory of all of our lost loved ones that are so proud of you.

Anonymous
3 months ago

In memory of Shawn Maschke

$20.00
Elizabeth M Chmielecki
3 months ago
$10.00
The Medved Family
3 months ago
$50.00
The Giovanis Crew
3 months ago
$50.00
Emily Smith
3 months ago
$24.00
The Martinez Family
3 months ago
$24.00
Beth Fancher
3 months ago

Good luck!

$30.00
Ali
3 months ago
$24.00
Chrissy
3 months ago

❤️

$24.00
Anonymous
3 months ago

In memory of Shawn Maschke

$150.00
Aunt kathy
3 months ago

Love you, run fast

$50.00
Nicolle Mullen
3 months ago

In memory of Viv and all the courageous kids that are fighting this evil disease.

$50.00
Sponge Bob
3 months ago

Gary

$24.00
Kittie Minick
3 months ago
$48.00
Pavan
3 months ago

All the best; Stay Safe & Secure.

Special Angel
3 months ago

In memory of Shawn Maschke

$50.00
Sevie
3 months ago

WTG!

$24.00