Why I'm Running

This will be my third year running for such a noble cause. It is by far one of the hardest, yet most rewarding things I’ve ever done! I’m so thankful to be part of such an amazing cause!

Philippians 4:13
I can do all things through Him who strengthens me.


About Team Jacoby

At our 28 week ultrasound appointment, while we were pregnant with twins, our doctors gave us the devastating news that our daughter, Jacoby, was critically ill.

Jacoby was diagnosed with non-immune hydrops fetalis, a severe, life-threatening condition in which abnormal amounts of fluid build up in two or more parts in the body of a fetus or newborn. Jacoby had accumulation of fluid in her chest cavity, around her lungs, and within layers of skin causing severe edema (swelling). She was given a 5 percent chance to make it to a live birth, and if she lived, another 5 percent chance to survive. We were completely crushed, feeling helpless knowing no medical heroics could be taken as it would risk the life of the Jacoby’s healthy twin Sister, Jenna.

On June 1, 2013, at only 31 weeks old, Jacoby was delivered. Jacoby was born 2 pounds heavier than her twin Sister Jenna - all fluid, her body swollen and skin stretched. Jacoby has to endure several chest tubes to drain the fluid which was restricting her breathing and lung development. After several months, and very good progress, Jacoby was still the sickest child in the NICU. Jacoby endured a number of life-saving procedures, including two evasive surgeries on her left and right lung. Jacoby could also never extubate and breathe on her own without the use of a ventilator, so a tracheotomy was placed to help Jacoby breathe. Jacoby spent 10 months in the Cleveland Clinic Children’s Main Campus NICU and 6 months at the Cleveland Clinic Children’s Hospital for Rehabilitation before finally going home.

Jacoby is 6 years old and has such a JOY for life. She's been ventilator-free for several years and breathes on her own. Jacoby uses leg braces to assist with walking. Even though she is mostly nonverbal, she is learning new words every day and communicates using ASL (American Sign Language).

So many odds stack against Jacoby, a 5% chance to make it to a live birth, a 5% chance to survive if she did make it to a live birth, brain dead, never breathe on her own without mechanical assistance, never sit-up, never walk, never talk, never eat by mouth, but Jacoby’s fighting spirit has allowed her to overcome so much in her short life. We are very blessed and honored to have this incredible opportunity to share Jacoby's powerful journey of her ultimate fight to live, even with all the odds stacked against her.

$3,033.00 of $3000 goal

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Recent Donations

Sara
14 days ago

Thanks for all you do for the kids sho need it most!!

$240.00
Giovanni DeNigris
15 days ago
$150.00
Sarah Darr
15 days ago
$24.00
Randy and Darlene Cole
15 days ago

RUN, BETTIE, RUN!!!

Bettie Schmikla Team/ReMax Results
16 days ago

Thank You! Clients who have closed 2020 Richeys,Green,Tribuzzo,D'Amico,Tran,Valentine, Pacheco,Levin,Gutierrez,Sheehy,Cooper,Hunt,Staley,Russell,Sintic,Perkins,Balogh,Smith,Gillenwater, Stropkay,Orav,Schoger,Yasic,Staggs,Hewitt,Pepka, Stimson,Gionti

$800.00
Stacey O'Keefe
16 days ago
$48.00
David Schmikla
17 days ago
$240.00
Byerly Family
18 days ago

Wishing you another great run this year!

$100.00
Sammi Stimson
21 days ago

Good luck!

$24.00
Anonymous
22 days ago

In Memory of Peggy Boss.

$500.00
Roger& Lorrie Taylor
22 days ago
$100.00
Haylee
22 days ago

Love your heart to do this and for all the joy it brings these kiddos and families!

$100.00
Aldridge Family
22 days ago
$48.00
Anonymous
25 days ago
$50.00
Julie Sanders
25 days ago

Go Bettie!!!

$75.00
Susan and Eric Parker
25 days ago

You rock!!

$48.00
CrossFit PAINesville family
1 month ago
Mary Ann Hren
1 month ago

Good Luck Bettie!!

$25.00
Anonymous
2 months ago

Glad you do this!

$48.00