Why I'm Running
I want to make a difference in a child’s life and challenge myself
About Team Jacoby

At our 28 week ultrasound appointment, while we were pregnant with twins, our doctors gave us the devastating news that our daughter, Jacoby, was critically ill.

Jacoby was diagnosed with non-immune hydrops fetalis, a severe, life-threatening condition in which abnormal amounts of fluid build up in two or more parts in the body of a fetus or newborn. Jacoby had accumulation of fluid in her chest cavity, around her lungs, and within layers of skin causing severe edema (swelling). She was given a 5 percent chance to make it to a live birth, and if she lived, another 5 percent chance to survive. We were completely crushed, feeling helpless knowing no medical heroics could be taken as it would risk the life of the Jacoby’s healthy twin Sister, Jenna.

On June 1, 2013, at only 31 weeks old, Jacoby was delivered. Jacoby was born 2 pounds heavier than her twin Sister Jenna - all fluid, her body swollen and skin stretched. Jacoby has to endure several chest tubes to drain the fluid which was restricting her breathing and lung development. After several months, and very good progress, Jacoby was still the sickest child in the NICU. Jacoby endured a number of life-saving procedures, including two evasive surgeries on her left and right lung. Jacoby could also never extubate and breathe on her own without the use of a ventilator, so a tracheotomy was placed to help Jacoby breathe. Jacoby spent 10 months in the Cleveland Clinic Children’s Main Campus NICU and 6 months at the Cleveland Clinic Children’s Hospital for Rehabilitation before finally going home.

Jacoby is 6 years old and has such a JOY for life. She's been ventilator-free for several years and breathes on her own. Jacoby uses leg braces to assist with walking. Even though she is mostly nonverbal, she is learning new words every day and communicates using ASL (American Sign Language).

So many odds stack against Jacoby, a 5% chance to make it to a live birth, a 5% chance to survive if she did make it to a live birth, brain dead, never breathe on her own without mechanical assistance, never sit-up, never walk, never talk, never eat by mouth, but Jacoby’s fighting spirit has allowed her to overcome so much in her short life. We are very blessed and honored to have this incredible opportunity to share Jacoby's powerful journey of her ultimate fight to live, even with all the odds stacked against her.

$700.00 of $700 goal

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Recent Donations

Miss Mary
15 days ago

Go Jo!! You got this!

$32.00
Hazen kids
15 days ago
$24.00
Jax and Derek
18 days ago

Good luck!

$120.00
Pinky
18 days ago

Goodluck Courtney!

Hornyak family
1 month ago

Good luck Courtney! You got this!!

$48.00
Tina Prince
1 month ago

Good luck You got this

$100.00
~chrissy
1 month ago
$50.00
Miss Bev
1 month ago

Good luck girl!!

$20.00
RE/MAX Results, Bettie Schmikla
2 months ago

Courtney, So glad you are joining us for this Great Event.

$50.00
marina
3 months ago

Good luck! I am so proud of you! Love you!

$24.00
Larry and Beth Buehner
3 months ago

Good Luck Jo! So proud of you!

$48.00
Christina Meyer
3 months ago
$24.00
Mary and Frank Pertz
3 months ago

God bless and Prayers

$24.00
Mary and Frank Pertz
3 months ago

God bless you!

$24.00
Anonymous
3 months ago
$50.00
Madeline Everiss
3 months ago

Good luck Courtney! Love you! Such a good cause to run for!!!

$12.00