Why I'm Running
To give kids a chance to forget about the hospital and enjoy life!
About Team Jacoby

At our 28 week ultrasound appointment, while we were pregnant with twins, our doctors gave us the devastating news that our daughter, Jacoby, was critically ill.

Jacoby was diagnosed with non-immune hydrops fetalis, a severe, life-threatening condition in which abnormal amounts of fluid build up in two or more parts in the body of a fetus or newborn. Jacoby had accumulation of fluid in her chest cavity, around her lungs, and within layers of skin causing severe edema (swelling). She was given a 5 percent chance to make it to a live birth, and if she lived, another 5 percent chance to survive. We were completely crushed, feeling helpless knowing no medical heroics could be taken as it would risk the life of the Jacoby’s healthy twin Sister, Jenna.

On June 1, 2013, at only 31 weeks old, Jacoby was delivered. Jacoby was born 2 pounds heavier than her twin Sister Jenna - all fluid, her body swollen and skin stretched. Jacoby has to endure several chest tubes to drain the fluid which was restricting her breathing and lung development. After several months, and very good progress, Jacoby was still the sickest child in the NICU. Jacoby endured a number of life-saving procedures, including two evasive surgeries on her left and right lung. Jacoby could also never extubate and breathe on her own without the use of a ventilator, so a tracheotomy was placed to help Jacoby breathe. Jacoby spent 10 months in the Cleveland Clinic Children’s Main Campus NICU and 6 months at the Cleveland Clinic Children’s Hospital for Rehabilitation before finally going home.

Jacoby is 6 years old and has such a JOY for life. She's been ventilator-free for several years and breathes on her own. Jacoby uses leg braces to assist with walking. Even though she is mostly nonverbal, she is learning new words every day and communicates using ASL (American Sign Language).

So many odds stack against Jacoby, a 5% chance to make it to a live birth, a 5% chance to survive if she did make it to a live birth, brain dead, never breathe on her own without mechanical assistance, never sit-up, never walk, never talk, never eat by mouth, but Jacoby’s fighting spirit has allowed her to overcome so much in her short life. We are very blessed and honored to have this incredible opportunity to share Jacoby's powerful journey of her ultimate fight to live, even with all the odds stacked against her.

$1,244.00 of $700 goal

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Recent Donations

Cherie Holland
12 days ago
$24.00
Linda Marrs
12 days ago
$24.00
Aunt Cyndi
13 days ago

Love.

$50.00
Jenna Malley
13 days ago

You’re AMAZING!

$48.00
Natalia Ortega
13 days ago
$24.00
Kevin and Erin
13 days ago
$50.00
Brian Ashford
13 days ago
$24.00
Steve and Deana Hill
14 days ago
$35.00
Aunt Jenny
14 days ago
$24.00
Kim Froimson
1 month ago
$50.00
Ashley springer
2 months ago
$20.00
Allison Lintern
2 months ago
$48.00
Kris Cipolla
2 months ago
$48.00
RE/MAX Results, Bettie Schmikla
2 months ago

Great Job, Jacob.

$50.00
April Frazier
2 months ago

:)

$25.00
Kat Adams
2 months ago
$81.00
The Gotschalls
2 months ago

Great cause! Great guy! ❤️

$24.00
Jenny Davis
2 months ago
$15.00
The Heeter Family
2 months ago

Can't wait to run with you!

$25.00
Kat Family
2 months ago

Good luck!

$24.00
William & Robin Brower
3 months ago

Good deeds beget blessings!

$120.00
Holly & James Lynch
3 months ago
$24.00
Becky Burt
3 months ago
$120.00
Auntie P
3 months ago
$24.00
Dave Marrs
3 months ago
$24.00
Jenny Hale
3 months ago
$48.00
Kristina Clemency
3 months ago

Run Forest Run!

$24.00
The Schaefers
3 months ago
$24.00
Shelly and Bryan
3 months ago

Congrats Jacob!!

$50.00
Jameson Reynolds
3 months ago

Go DADA!

$24.00
Hudson Reynolds
3 months ago

Go DADA!

$24.00