Why I'm Running
I am taking on the 24 in 24 for the wish kiddos. It’s all about the sweet, sweet kids who have been through more than anyone should go through in a lifetime, and they’ve been through it all in their short time here, with a smile on their faces! I love running, I love kids, I’m a new mama, and I love helping others, so roll all that into one, and you’ve got my “why” for running the 24 in 24.
About Team Jacoby

At our 28 week ultrasound appointment, while we were pregnant with twins, our doctors gave us the devastating news that our daughter, Jacoby, was critically ill.

Jacoby was diagnosed with non-immune hydrops fetalis, a severe, life-threatening condition in which abnormal amounts of fluid build up in two or more parts in the body of a fetus or newborn. Jacoby had accumulation of fluid in her chest cavity, around her lungs, and within layers of skin causing severe edema (swelling). She was given a 5 percent chance to make it to a live birth, and if she lived, another 5 percent chance to survive. We were completely crushed, feeling helpless knowing no medical heroics could be taken as it would risk the life of the Jacoby’s healthy twin Sister, Jenna.

On June 1, 2013, at only 31 weeks old, Jacoby was delivered. Jacoby was born 2 pounds heavier than her twin Sister Jenna - all fluid, her body swollen and skin stretched. Jacoby has to endure several chest tubes to drain the fluid which was restricting her breathing and lung development. After several months, and very good progress, Jacoby was still the sickest child in the NICU. Jacoby endured a number of life-saving procedures, including two evasive surgeries on her left and right lung. Jacoby could also never extubate and breathe on her own without the use of a ventilator, so a tracheotomy was placed to help Jacoby breathe. Jacoby spent 10 months in the Cleveland Clinic Children’s Main Campus NICU and 6 months at the Cleveland Clinic Children’s Hospital for Rehabilitation before finally going home.

Jacoby is 6 years old and has such a JOY for life. She's been ventilator-free for several years and breathes on her own. Jacoby uses leg braces to assist with walking. Even though she is mostly nonverbal, she is learning new words every day and communicates using ASL (American Sign Language).

So many odds stack against Jacoby, a 5% chance to make it to a live birth, a 5% chance to survive if she did make it to a live birth, brain dead, never breathe on her own without mechanical assistance, never sit-up, never walk, never talk, never eat by mouth, but Jacoby’s fighting spirit has allowed her to overcome so much in her short life. We are very blessed and honored to have this incredible opportunity to share Jacoby's powerful journey of her ultimate fight to live, even with all the odds stacked against her.

$1,200.00 of $1200 goal

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Recent Donations

Anonymous
11 days ago

You got this!

$75.00
T Van Winkle
11 days ago
The Forsythe Family
12 days ago
$24.00
Jessica Porter
12 days ago
$24.00
Pam
12 days ago

💝

$10.00
The Gerbec’s
12 days ago

You’ve got this!

$24.00
Nicki G
12 days ago

Proud of you Jen!

$24.00
Ember Griffith
12 days ago
$24.00
James Doerr
18 days ago

Love you, Auntie!

$48.00
Kristi Komara
20 days ago
$24.00
Anonymous
20 days ago
$25.00
Steve
20 days ago
$50.00
Joe Fortunato
20 days ago
$25.00
Dad
21 days ago
$50.00
Anonymous
21 days ago

There is no limit to the amount of good you can do if you don't care who gets the credit.

Jen Freeman
21 days ago

Good luck Jen!

$20.00
Betsy K Lehtonen
21 days ago
$20.00
Anonymous
21 days ago
$10.00
Alida
23 days ago

So proud of you, Jennifer 💙

$24.00
MeeMaa
23 days ago

Love you ❤️

$50.00
Julia Shaw
26 days ago

Good luck!

Kathleen Pierce
26 days ago
$24.00
Anonymous
26 days ago

When your legs stop working, run with your heart! ❤

$100.00
Anonymous
26 days ago
$24.00
Riene Albin
26 days ago
$20.00
Tina Adamic
28 days ago
$10.00
Brenda & Phil Scinto
29 days ago
$25.00
Denise
29 days ago
$25.00
Christine Hartog
29 days ago

God Bless Jacoby :)

$24.00
Justin
29 days ago
$25.00
Danny
29 days ago
$25.00