Why I'm Running

I have always wanted to participate in this event but it never jived with my schedule. As a cancer survivor, I know what it means to have the support of friends and even strangers so this event has always tugged at my heart strings, not to mention running “for” someone is how I got into running in the first place six years ago so this is something I have always wanted to do. I am so excited to finally be a part of this amazing event.


About Team Jacoby

At our 28 week ultrasound appointment, while we were pregnant with twins, our doctors gave us the devastating news that our daughter, Jacoby, was critically ill.

Jacoby was diagnosed with non-immune hydrops fetalis, a severe, life-threatening condition in which abnormal amounts of fluid build up in two or more parts in the body of a fetus or newborn. Jacoby had accumulation of fluid in her chest cavity, around her lungs, and within layers of skin causing severe edema (swelling). She was given a 5 percent chance to make it to a live birth, and if she lived, another 5 percent chance to survive. We were completely crushed, feeling helpless knowing no medical heroics could be taken as it would risk the life of the Jacoby’s healthy twin Sister, Jenna.

On June 1, 2013, at only 31 weeks old, Jacoby was delivered. Jacoby was born 2 pounds heavier than her twin Sister Jenna - all fluid, her body swollen and skin stretched. Jacoby has to endure several chest tubes to drain the fluid which was restricting her breathing and lung development. After several months, and very good progress, Jacoby was still the sickest child in the NICU. Jacoby endured a number of life-saving procedures, including two evasive surgeries on her left and right lung. Jacoby could also never extubate and breathe on her own without the use of a ventilator, so a tracheotomy was placed to help Jacoby breathe. Jacoby spent 10 months in the Cleveland Clinic Children’s Main Campus NICU and 6 months at the Cleveland Clinic Children’s Hospital for Rehabilitation before finally going home.

Jacoby is 6 years old and has such a JOY for life. She's been ventilator-free for several years and breathes on her own. Jacoby uses leg braces to assist with walking. Even though she is mostly nonverbal, she is learning new words every day and communicates using ASL (American Sign Language).

So many odds stack against Jacoby, a 5% chance to make it to a live birth, a 5% chance to survive if she did make it to a live birth, brain dead, never breathe on her own without mechanical assistance, never sit-up, never walk, never talk, never eat by mouth, but Jacoby’s fighting spirit has allowed her to overcome so much in her short life. We are very blessed and honored to have this incredible opportunity to share Jacoby's powerful journey of her ultimate fight to live, even with all the odds stacked against her.

$954.00 of $2020 goal

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Recent Donations

Jeff LeRoy
15 days ago

Have fun and good luck!

$48.00
Kurt & Dorothy
15 days ago

Go Team Jacoby..! 🙏🏼🙏🏼

$50.00
Denise Gray
15 days ago

Just keep swimming...and running

$25.00
Fit 4 Life Physical Therapy
16 days ago

Just Keep Running friend.

$50.00
Larry Weeks
17 days ago

I hope this will help.

$10.00
Damion and Erin
18 days ago

Joy, we are so proud of you! Good Luck, sweet friend💗💗💗

$35.00
Marlena Peel
19 days ago

So great of you Joy! Thanks for all you do.

$35.00
Faith, Joy’s mom
22 days ago

Jacoby, “Out of all the people on the face of the earth, the Lord has chosen you to be His treasured possession.” ~ Deuteronomy 7:6

$30.00
Kathryn Fellenstein-Good Running
29 days ago
$24.00
Hasani Wheat for Good Running
1 month ago
$24.00
Donna Crooks for GoodRunning
1 month ago
$24.00
Diane Bosley- Good running
1 month ago

Enjoy the experience, and help to keep "Joy" in Jacoby's days!

$48.00
JKS Designs
1 month ago
$30.00
Maurice & Debbie LaFond
1 month ago

Go Awesome Sauce!

$24.00
Linda Elek from Good Running
1 month ago
$24.00
George Sanders
1 month ago
$50.00
Paul Bishop
2 months ago

Jacoby & Joy: We all should aspire to your fighting spirit!

$50.00
Your friend
2 months ago

Cheering for you!!💗

$48.00
Crystal Wilkie
2 months ago

Thank you for your hard work Joy xoxo

$48.00
Carolyn Drotar
2 months ago
David Addison
2 months ago
$48.00
RE/MAX Results, Bettie Schmikla
2 months ago

Great Job, Joy.

$50.00
Ed & Carolyn
2 months ago

We’re all cheering on you and Jacoby!

$24.00
Skyland Media
3 months ago
$50.00
Jennifer Payerle
3 months ago
$25.00
Sue W.
3 months ago

For Jacoby

$25.00