Why I'm Running
I had the unexpected privilege to participate last year filling a spot for an injured runner. What an amazing experience! To hear the stories of these Wish Kids lives and to meet these beautiful children leaves a forever impression on your heart. Was an honor to be a part of something so impactful to so many and in so many ways.
About Team Jacoby

At our 28 week ultrasound appointment, while we were pregnant with twins, our doctors gave us the devastating news that our daughter, Jacoby, was critically ill.

Jacoby was diagnosed with non-immune hydrops fetalis, a severe, life-threatening condition in which abnormal amounts of fluid build up in two or more parts in the body of a fetus or newborn. Jacoby had accumulation of fluid in her chest cavity, around her lungs, and within layers of skin causing severe edema (swelling). She was given a 5 percent chance to make it to a live birth, and if she lived, another 5 percent chance to survive. We were completely crushed, feeling helpless knowing no medical heroics could be taken as it would risk the life of the Jacoby’s healthy twin Sister, Jenna.

On June 1, 2013, at only 31 weeks old, Jacoby was delivered. Jacoby was born 2 pounds heavier than her twin Sister Jenna - all fluid, her body swollen and skin stretched. Jacoby has to endure several chest tubes to drain the fluid which was restricting her breathing and lung development. After several months, and very good progress, Jacoby was still the sickest child in the NICU. Jacoby endured a number of life-saving procedures, including two evasive surgeries on her left and right lung. Jacoby could also never extubate and breathe on her own without the use of a ventilator, so a tracheotomy was placed to help Jacoby breathe. Jacoby spent 10 months in the Cleveland Clinic Children’s Main Campus NICU and 6 months at the Cleveland Clinic Children’s Hospital for Rehabilitation before finally going home.

Jacoby is 6 years old and has such a JOY for life. She's been ventilator-free for several years and breathes on her own. Jacoby uses leg braces to assist with walking. Even though she is mostly nonverbal, she is learning new words every day and communicates using ASL (American Sign Language).

So many odds stack against Jacoby, a 5% chance to make it to a live birth, a 5% chance to survive if she did make it to a live birth, brain dead, never breathe on her own without mechanical assistance, never sit-up, never walk, never talk, never eat by mouth, but Jacoby’s fighting spirit has allowed her to overcome so much in her short life. We are very blessed and honored to have this incredible opportunity to share Jacoby's powerful journey of her ultimate fight to live, even with all the odds stacked against her.

$1,330.00 of $1000 goal

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Recent Donations

the Malkamaki family
2 days ago

Sorry this comes late...Thank you for running for such a great cause, Vanessa!

$100.00
Gina Payne
9 days ago
$100.00
Tom and Rose
12 days ago

Wow!

$48.00
Amy Ortiz
13 days ago

Proud of you Vanessa!

Bill and Debbie
13 days ago

Well done, Vanessa!

$50.00
Pam and Frank Nardis
13 days ago
$48.00
Greg Wolcott family
13 days ago

God Bless you for following the desire of your heart. 😘

$50.00
The Ziance Family
13 days ago

Good luck, Vanessa!!🏃🏽‍♀️💕

$50.00
Dad and Mom
14 days ago

You inspire us so much!! Love you so much!!!

$48.00
Rachel Gaspar
14 days ago

Love your heart Vanessa❤️

$25.00
Gigliotti Family
14 days ago

Good luck Vanessa. You are doing a great thing. Best wishes to Jacoby.

$24.00
Leck family
18 days ago

A beautiful runner for a beautiful child.

$50.00
Ben & Cameron Bachna
21 days ago

What a great cause! Go Vanessa!

$48.00
Chollett family
21 days ago

Hope and Love to you, Jacoby. And go, Vanessa!

$24.00
Melanie & Jeff Staron
21 days ago

To my running buddy, so glad you get to run this year and know you will do well! Go Nessa!

$50.00
Anonymous
22 days ago
Catherine Wolcott
24 days ago

Vanessa- You're an inspritation, we love you!

$50.00
Anonymous
1 month ago

Go get em!!

$100.00
The Rich Family
1 month ago
$100.00
SCOULOUKAS Family
1 month ago

❤️❤️❤️

$50.00
Anonymous
1 month ago
$100.00
RE/MAX Results, Bettie Schmikla
2 months ago

Vanessa, Glad you are back. Go get em...

$50.00