Why I'm Running
My husband and I have participated in several local 5Ks over the years and decided to take on this event in 2017. We knew it was a great cause and that it would be challenging. What we didn't know when we started was just how much it would mean to us to be able to contribute our time, money and energy to this amazing event and to the wonderful kids for whom we were running. For the last two years, we've been event sponsors and come multiple times throughout the night to cheer on the challengers and bring more supplies to them. Now that we have our own child, I am more excited than ever to come back as a challenger for the 2020 event and take on another 24 hours of running!
About Team Penelope

Penny was our smiley, talkative baby with contagious joy. After her second birthday, we started to notice heightened clumsiness, delayed milestones, and personality changes. We suspected something was wrong and started searching for answers.

She was diagnosed with obstructive sleep apnea with suspected inner ear issues. During her tonsillectomy the surgeon found her ears to be pristine and had no explanation for her off-balance. Penny’s symptoms heightened with sporadic headaches and vomiting. After personal research, and clean ears, we started to suspect a tumor and began pursuing neurology.On June 21, ten days post tonsillectomy, Penny had such alarming symptoms we rushed her to the ER and demanded a CT scan. We discovered Penny did in fact have a very large tumor in her cerebellum and massive fluid buildup surrounding her brain. She was transported to Cleveland Clinic where she received an 18 hour brain surgery and spent a month recovering with rehab. Just 3 weeks later, we left to adopt her little brother in India.

Penny still attends weekly therapy where she works on strength, coordination, and confidence. Although the brain damage caused by the tumor may never reverse, Penny has continued to make miraculous progress. These days she loves all things princesses, but also loves playing superhero with her brothers.Penny Lou will always be our brave girl. Her bravery was inspirational through her surgeries and learning to walk again in therapy. She continues to be brave through appointments and MRIs every 3 months. We continue to sing praises for the way we’ve seen God write our brave Penny Lou’s story.

$1,096.00 of $700 goal

Share this Challenger:


Recent Donations

Bowden
15 days ago

❤️💪Heart of Gold💪❤️

Adrienne Foxx
19 days ago
$24.00
Carmen Berger
24 days ago
$48.00
Charlotte and Hunter Hudson
24 days ago

Go Julia!!!

Jason Dolan
25 days ago
$40.00
Meghan
1 month ago
$24.00
Fred Cirignano
2 months ago
$250.00
John and Colleen Angelo
2 months ago
$24.00
Deanna Foley
2 months ago

Proud of you and all your hard work for Penny and her family!

$50.00
Sandy Cirignano
3 months ago
$50.00
Alana
3 months ago

Go Julie! Keep up the amazing work!

$25.00
Angie Hamster
3 months ago

In memory of Sammie and Mimi, the ghost cat haunting Julia’s home. 👻🐱

$120.00
Anonymous
3 months ago
Anonymous
3 months ago
Mo Quinones
3 months ago
$50.00
Laura Cirignano
3 months ago
$50.00
GC Yahoo Fuuf
3 months ago

That is psychotic