Why I'm Running
To support these kiddos and families is my annual mission. My favorite weekend of the year! Love AFC, A Special Wish CLE, the participants, everything :purple_heart:
About Team Penelope

Penny was our smiley, talkative baby with contagious joy. After her second birthday, we started to notice heightened clumsiness, delayed milestones, and personality changes. We suspected something was wrong and started searching for answers.

She was diagnosed with obstructive sleep apnea with suspected inner ear issues. During her tonsillectomy the surgeon found her ears to be pristine and had no explanation for her off-balance. Penny’s symptoms heightened with sporadic headaches and vomiting. After personal research, and clean ears, we started to suspect a tumor and began pursuing neurology.On June 21, ten days post tonsillectomy, Penny had such alarming symptoms we rushed her to the ER and demanded a CT scan. We discovered Penny did in fact have a very large tumor in her cerebellum and massive fluid buildup surrounding her brain. She was transported to Cleveland Clinic where she received an 18 hour brain surgery and spent a month recovering with rehab. Just 3 weeks later, we left to adopt her little brother in India.

Penny still attends weekly therapy where she works on strength, coordination, and confidence. Although the brain damage caused by the tumor may never reverse, Penny has continued to make miraculous progress. These days she loves all things princesses, but also loves playing superhero with her brothers.Penny Lou will always be our brave girl. Her bravery was inspirational through her surgeries and learning to walk again in therapy. She continues to be brave through appointments and MRIs every 3 months. We continue to sing praises for the way we’ve seen God write our brave Penny Lou’s story.

$901.00 of $1000 goal

Share this Challenger:


Recent Donations

Kylie Earl & Family
13 days ago

We are so proud of you! 💪🏼💜 You will always hold a special place in our heart. Kylie is so excited to see you tomorrow!!! 🙌🏼

$50.00
Veronica, Jerry and Lisse
13 days ago

I love and miss you! Wish I was running right there by your side!

$50.00
Dominic
15 days ago
$25.00
Ed
16 days ago
$48.00
Anonymous
3 months ago

VIVI

Dolores Kern
3 months ago
$25.00
Anonymous
3 months ago