by adrianp | Feb 15, 2022 | Uncategorized
Liza Hope or “Wonder Liza” as she has been nicknamed is 5-years-old (a whole hand as she says). Like big sister Emily, Liza was born with a rare genetic illness called Hurler Syndrome or MPS-1, which has resulted in a bone marrow transplant and ten surgeries to...
by adrianp | Feb 15, 2022 | Uncategorized
Mireya was born on February 28th, 2017. Her name means ‘miracle’ in Spanish. Mireya was such a happy baby! She almost never cried and kept us laughing everyday with her energy and beautiful smile. Mireya loves to sing songs from her favorite animated movies like Sing,...
by adrianp | Feb 15, 2022 | Uncategorized
Danny was born November 6, 2020. After two weeks of nursing like a champ, he stopped defecating and the colic ensued. We saw GI specialists and chiropractors for help. At 7 weeks old, while at his uncle’s wedding in Florida, he started having seizures. We went...
by adrianp | Feb 15, 2022 | Uncategorized
Lottie is a bubbly girl who keeps us laughing with her silly antics. At 2 years old Lottie began to have what looked like breath holding spells- which were terrifying to watch but we were assured that this was something she would grow out of. Unfortunately the number...
by adrianp | Feb 10, 2022 | Uncategorized
Amelia was born on December 31, 2014. She came into this world as a 23 week, 1lb 2oz micro-preemie. Her twin sister Grace was only 7 oz and passed away at two hours old. Amelia spent the first 176 days of her life in the Neonatal Intensive Care Unit. She developed...
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