Team

Cece

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Cecilia Nicole was born on November 7th, 2018. What started as a simple 36-week checkup, turned quickly into rushing to the hospital, hoping that we would get there in time to keep mom and baby safe. Despite our best efforts, Cecilia came into this world quietly. After the longest 9 minutes of our lives, we heard her cry. No one knows how long she was without oxygen or why it happened, but her hypoxic event caused severe brain injuries. She went through cooling therapy to help her brain heal and after 72 hours she was finally able to be held.

Cecilia spent 38 days in the NICU, while there she was given multiple diagnoses- HIE, hydrocephalus, periventricular leukomalacia, and laryngomalacia. We went home shocked, but grateful to have our baby girl with us. At three months old, she was diagnosed with Infantile Spasms or West Syndrome. We were told that this catastrophic form of epilepsy would slowly destroy her brain, making it impossible for her to progress beyond the newborn stage.

Thankfully we were able to find a doctor who believed in Cecilia. He was able to get her the right medication management to help her. Fast forward to now, 7 surgeries, additional diagnoses (CP, gastroparesis, hearing loss, esotropia), and lots of therapy later, Cecilia is thriving. She’s non-mobile and nonverbal but refuses to let that stop her from doing all the things a sassy 5 year old wants to do. She loves taking trips to Target and picking out new outfits. Her favorite pastime is reading books with her little brother, Miles, and singing along to her favorite Disney songs. She’s a strong, brilliant, resilient, little girl who seems to make an impact on everyone she encounters. She’s our spicy little diva and we are so grateful to have her in our lives!

TEAM Cece

Challengers

David Plumley
Johnathan Penza
Nicholette Domoracki
Annabel McQuillan
Sonja Schussler
Caroline DeCicco
Emily Hanson
Sydney Victor
Tabatha VanCise
Bill Misconish
Monica Svets
Jacob Reynolds
Jennifer Kirschstein
Stephanie Mueller
Brittany Reynolds
Vanessa Allen
Jaclyn Shaffer
Megan Schmid Lewis
Nancy Manfredi
Chelsea Meyer
Jeremie Pesek
Alana Morabith
Cynthia Makcen
Victoria Scott
Chrissy Vargo
Michael Bathurst
Rachel Fabian
Annie Murray
Rachel Siegel
Melissa Strand
Jennifer Baroni
Abram Fabian
Nick Greenawalt
Emily Dorrell