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Jordan was born July 1st, 2017, with a very rare congenital heart defect called “Shone’s Complex.” Shone’s Complex accounts for less than 1% of all congenital heart diseases. The maternal fetal medicine specialist at the Cleveland Clinic discovered Jordan’s heart defect during the anatomy scan at 20 weeks gestation. From the time Jordan was born and even now, he is followed by Dr Zahka, a pediatric cardiologist. With Dr Zahka and Dr Najm’s excellent data and expertise on Jordan’s condition, Jordan had his first open heart surgery at just 6 days old for extensive aortic arch repair at the Cleveland Clinic. Jordan then had his second open heart surgery to replace his aortic valve at 8 months old, with Dr Najm. Jordan began thriving after this surgery. His appetite and energy levels increased; his shortness of breath greatly improved. We are so thankful for pediatric cardiology and cardiothoracic team at Cleveland Clinic for helping Jordan become the happy and playful 4-year-old that he is today!

Despite his congenital heart defect, Jordan has endless energy and loves to run and play. Fun fact about Jordan: He can tell you about ANY construction vehicle there is and what it does. Jordan is very excited to start pre-k this fall and learn new things. Jordan loves race cars, hiking and biking with family, camping, and dancing to electronic dance music. Jordan is such a sweet and kindhearted boy; he is truly a warrior after everything he has gone through. Jordan is so loved and brings us joy each and every day.

TEAM Jordan


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