Why I'm Running
I have been running in the 24 in 24 since the wish kid was Vivi Zaratsian. I run to honor her memory and to help kids like her.
About Team Skylar

Skylar was born in 2019 a healthy baby girl. Within 4 months, our lives changed forever when Skylar was diagnosed with Neuroblastoma cancer. With one tumor in the adrenal gland, we decided to wait and watch as sometimes it can resolve on its own. Unfortunately, when Skylar was 6 months old, she was diagnosed with a very rare neurological disease called Opsoclonus Myoclonus Ataxia Syndrome. This disease affects 2% of children with neuroblastoma and has a very wide range of symptoms. With that diagnosis, it was emergent to get the tumor out and immediately start treatment in hopes to not have permanent neurological damage. Skylar had a full tumor resection at 6 months old where they also removed her adrenal gland. Within weeks she started chemotherapy and IVIG treatment. This treatment went on for 13 months and she completed it and was considered in remission from the cancer. Shortly after completing treatment, Skylar had a relapse with her OMAS. Neurology had to step in and immediately start an aggressive treatment. She completed 5 straight days of high dose steroid infusions and once a week for 4 weeks of rituximab infusions and at home daily steroids. This is now to be continued with monthly IVIG and every 6 months of high dose rituximab until 2024 as of now. She continues going to speech therapy and physical therapy every 2 weeks in hopes to regain her mobility and to learn how to speak. Due to Skylar being on high dose steroids for a long period of time and missing an adrenal gland, she is adrenal insufficient. This is something to watch extremely close as adrenal crisis can be fatal. She was just recently diagnosed with yet another rare disease called Dyskinesia and we are awaiting leg braces in hopes it helps her low tone, balance, dystonia, and strength. We are also scheduled for some testing at Cleveland Clinic for some concerns that she has a seizure disorder as well.

Our second home has become a hospital room. Skylar is now 2 years old and she has been through more than most adults have in their entire life and we aren’t quite seeing the light at the end of the tunnel, but I know it’s coming. Throughout it all, she has taught us about strength and courage that we didn’t know was possible. She has remained happy and with a huge personality to keep us all hopeful. She continues to fight and she doesn’t let anything stop her. She loves playing with her big brother and anything Disney. She is my hero and I think ASW for giving us this opportunity to bring awareness and share our story! We are forever grateful!

$2,357.00 of $700 goal

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Recent Donations

GEARSTAR
10 days ago
$120.00
Tom And Judy Zaratsian
11 days ago
$48.00
Lauri Shoemaker
11 days ago
$24.00
Kiki & Quincy Monter
12 days ago
$50.00
Caiti :)
12 days ago

In honor of Vivi

$24.00
Jane Barone
12 days ago
$50.00
Debbie Schindewolf
13 days ago
$25.00
Buckeye Reserve Title Agency
13 days ago
$200.00
Dana Zaratsian
14 days ago

In loving memory of our Vivi Girl, Skylar and all other the children braving this battle.

$100.00
Stephen Schillinger
14 days ago

Renee Schillinger

$50.00
Alliance Financial Services, Inc.
14 days ago

In Memory of Vivian Zaratsian

$100.00
Anonymous
24 days ago
$100.00
Heather Bemiller
26 days ago

Thank you for participating in this wonderful event in honor of Viv.

$24.00
Hillary Hill
1 month ago
$25.00
Cindy Dunn
2 months ago

Viv and Mr. Z

$24.00
Dan and Amber Zaratsian
2 months ago
$100.00
Terri and Gary Edwards
2 months ago

You’re amazing Kathy!

$24.00
Peacecore Studios
2 months ago

You are an amazing, strong woman with an absolutely beautiful family.

$250.00
Wadsworth family PT
2 months ago

In memory of Viv

$240.00
Rosie Zaratsian
2 months ago

In memory of Vivi Zaratsian 💜 and Thomas Zaratsian💞

$50.00
Kelly Hill
2 months ago
$50.00
Greg Schumacher
2 months ago
$24.00
Vlada
2 months ago

Kathy, you’re inspiring all of us to be a better version of ourselves

$25.00
Anna
2 months ago
$25.00
Katharine Parker
2 months ago

Support for Kathy & the efforts of the Zaratsian Family

$50.00
Rick & Cathy Monter
2 months ago

In memory of Vivian Zaratsian

$100.00
Anonymous
2 months ago

Kathy, Thank you! It’s a pleasure to support you in this great endeavor. I feel like Vivi will be running with you.

$25.00
Karen Kell
2 months ago
$50.00
Eva Mcintee
2 months ago
$100.00
Steve Schillinger
2 months ago

In memory of Renee Schillinger Vivi Zaratsian, Tom Zaratsian.

$100.00
Marty and Greg Boyd
2 months ago
$50.00
Kathy Kriebel
2 months ago

In Memory of Vivi Zaratsian Thomas Zaratsian

$100.00