Why I'm Running

In 2018 my 11-year-old daughter was diagnosed with ALL Leukemia and our lives completely changed. She has since fully recovered after 2.5 years of treatment, and we are thrilled that a year after treatment, she is still showing no signs of it returning. A wish-granting agency reached out to us, and they allowed her to have a wish granted, and her choice was Harry Potter World. The wish-granting agency allowed our family to spend a week at “Give Kids The World” and had special passes for Disney, Universal, and Sea World. I was determined to give back. I was introduced to “The 24 in 24” by Goodrunning.org. Goodrunning is a charity in Northeast Ohio that I have been a member of since 2017. I have since donated to “The 24 in 24” in 2018 and ran as a challenger in 2019 and 2020. In my third year, I dedicate my efforts to my friend and brother-in-law, Tom Sullivan (my sister’s husband) that fought cancer for six years and finally lost the last battle in November 2020. Families and children suffer so much from life-threatening diseases, and organizations like “The 24 in 24”, “A Special Wish – Cleveland,” and many others try to lighten the burden. I know firsthand how cancer impacts young child and they miss out on so much. Would you please help me and others grant these 15 young ones the wishes they desire and deserve and help them see they don’t fight this battle alone?


About Team Skylar

Skylar was born in 2019 a healthy baby girl. Within 4 months, our lives changed forever when Skylar was diagnosed with Neuroblastoma cancer. With one tumor in the adrenal gland, we decided to wait and watch as sometimes it can resolve on its own. Unfortunately, when Skylar was 6 months old, she was diagnosed with a very rare neurological disease called Opsoclonus Myoclonus Ataxia Syndrome. This disease affects 2% of children with neuroblastoma and has a very wide range of symptoms. With that diagnosis, it was emergent to get the tumor out and immediately start treatment in hopes to not have permanent neurological damage. Skylar had a full tumor resection at 6 months old where they also removed her adrenal gland. Within weeks she started chemotherapy and IVIG treatment. This treatment went on for 13 months and she completed it and was considered in remission from the cancer. Shortly after completing treatment, Skylar had a relapse with her OMAS. Neurology had to step in and immediately start an aggressive treatment. She completed 5 straight days of high dose steroid infusions and once a week for 4 weeks of rituximab infusions and at home daily steroids. This is now to be continued with monthly IVIG and every 6 months of high dose rituximab until 2024 as of now. She continues going to speech therapy and physical therapy every 2 weeks in hopes to regain her mobility and to learn how to speak. Due to Skylar being on high dose steroids for a long period of time and missing an adrenal gland, she is adrenal insufficient. This is something to watch extremely close as adrenal crisis can be fatal. She was just recently diagnosed with yet another rare disease called Dyskinesia and we are awaiting leg braces in hopes it helps her low tone, balance, dystonia, and strength. We are also scheduled for some testing at Cleveland Clinic for some concerns that she has a seizure disorder as well.

Our second home has become a hospital room. Skylar is now 2 years old and she has been through more than most adults have in their entire life and we aren’t quite seeing the light at the end of the tunnel, but I know it’s coming. Throughout it all, she has taught us about strength and courage that we didn’t know was possible. She has remained happy and with a huge personality to keep us all hopeful. She continues to fight and she doesn’t let anything stop her. She loves playing with her big brother and anything Disney. She is my hero and I think ASW for giving us this opportunity to bring awareness and share our story! We are forever grateful!

$2,000.00 of $2000 goal

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Recent Donations

Anonymous
5 days ago
Louise Belanger
5 days ago

May you reach your goal. What an amazing event, thank you for caring, you are such a champion!!!

Rachel collins
5 days ago

Inspiring effort - keep going! You’ve got this 👏🏻👏🏻👏🏻

$100.00
Lovas Family
5 days ago

2019 Team Andrew. Thank you for everything you do for these kids! We'll be cheering you on.

The Davidson Family
27 days ago

Helping to support the great efforts of friends like Mike who dedicate their time for great causes!

$54.00
Charles Frye
1 month ago

So very thankful for all the amazing people who have stepped up for love and support incredible

Sharon Mattiaccio
1 month ago
$50.00
Anonymous
1 month ago
$28.00
Jeremiah Andersen
1 month ago
$48.00
Carrie Wygmans
1 month ago

Anything to help children!

Brian Casey
1 month ago
$50.00
Kathleen Pierce
2 months ago
$24.00
Pam in Texas
2 months ago
$100.00
Dave Kiessling
2 months ago
$75.00
Ruth collier
2 months ago

I hope you can soon have a normal life

$120.00
Penny Sullivan
2 months ago

Praying for Skylar

$100.00
Walter Anderson
2 months ago
$35.00
Elizabeth C.
2 months ago
$25.00
Pam
2 months ago
$40.00
Maggie
2 months ago

In memory of Betty Anthony and Jonathan Anthony

$30.00
Jennifer Jensen
2 months ago
$24.00
Sterling Kirkland
2 months ago

You are an inspiration, stay strong.

$25.00
Amy Balash
2 months ago

Best wishes for Skylar

$24.00
Emily Davidson
2 months ago

Skylar, you are amazing! Stay strong! Mike, you rock!

$20.00
Marie James
2 months ago
$50.00
Serena
3 months ago

Because you're an amazing athlete running for an amazing reason. Thank you for always inspiring me!

$48.00
Tina Woods
3 months ago

You’re a warrior Mike.

$24.00
Louise Belanger
3 months ago