Why I'm Running

Hi I’m Tim, better known as Cece’s dad. This is my 3rd year experiencing this amazing event. 1st year as a Wish Dad. 2nd year as a volunteer for the entire 24 hours. This year as a Challenger. I’m taking on the 24 in 24 because meeting Jason, Eileen, and everyone at A Special Wish has been truly life changing. They taught me even in the hardest of times there is always a way to sprinkle in some happiness. A Special Wish and the 24 in 24 helped make my daughter’s Wish come true. Now it’s my turn to become a wish grantor. Can you help me make Skylar's wish come true?


About Team Skylar

Skylar was born in 2019 a healthy baby girl. Within 4 months, our lives changed forever when Skylar was diagnosed with Neuroblastoma cancer. With one tumor in the adrenal gland, we decided to wait and watch as sometimes it can resolve on its own. Unfortunately, when Skylar was 6 months old, she was diagnosed with a very rare neurological disease called Opsoclonus Myoclonus Ataxia Syndrome. This disease affects 2% of children with neuroblastoma and has a very wide range of symptoms. With that diagnosis, it was emergent to get the tumor out and immediately start treatment in hopes to not have permanent neurological damage. Skylar had a full tumor resection at 6 months old where they also removed her adrenal gland. Within weeks she started chemotherapy and IVIG treatment. This treatment went on for 13 months and she completed it and was considered in remission from the cancer. Shortly after completing treatment, Skylar had a relapse with her OMAS. Neurology had to step in and immediately start an aggressive treatment. She completed 5 straight days of high dose steroid infusions and once a week for 4 weeks of rituximab infusions and at home daily steroids. This is now to be continued with monthly IVIG and every 6 months of high dose rituximab until 2024 as of now. She continues going to speech therapy and physical therapy every 2 weeks in hopes to regain her mobility and to learn how to speak. Due to Skylar being on high dose steroids for a long period of time and missing an adrenal gland, she is adrenal insufficient. This is something to watch extremely close as adrenal crisis can be fatal. She was just recently diagnosed with yet another rare disease called Dyskinesia and we are awaiting leg braces in hopes it helps her low tone, balance, dystonia, and strength. We are also scheduled for some testing at Cleveland Clinic for some concerns that she has a seizure disorder as well.

Our second home has become a hospital room. Skylar is now 2 years old and she has been through more than most adults have in their entire life and we aren’t quite seeing the light at the end of the tunnel, but I know it’s coming. Throughout it all, she has taught us about strength and courage that we didn’t know was possible. She has remained happy and with a huge personality to keep us all hopeful. She continues to fight and she doesn’t let anything stop her. She loves playing with her big brother and anything Disney. She is my hero and I think ASW for giving us this opportunity to bring awareness and share our story! We are forever grateful!

$2,871.00 of $2400 goal

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Recent Donations

Missy Stamford (Addie's Aunt)

#addiestrong

$25.00
The Wynn Family
11 days ago

Keep up the great work, Tim!

$24.00
Matt A
12 days ago
$50.00
Sarah, EJ & Corey
12 days ago
$24.00
Nancy Mocsiran
12 days ago
$25.00
Monte Morrow
13 days ago
$24.00
Cyndi Hendley (Sue Donnally)
14 days ago

For Tie-Dye Shirt!!

$15.00
Lauren Siers
14 days ago
$15.00
Julie Dey
14 days ago

Tie Dye Shirt 🎉

$15.00
Missy Stamford
14 days ago

Tie Dye Shirt

$15.00
Jess Ruff
15 days ago

Thanks for the Tie dye shirts!! :)

$30.00
Morgan Winegord
15 days ago

Thank you for the amazing tie-dye shirt!

$15.00
Kelly Redmond
15 days ago

Good Luck Tim!

$25.00
Danielle Janosik
16 days ago

Tie Dye Shirt☺️

$15.00
Shannon Castiglione
16 days ago

Size Small - Tie Dye Mile

$15.00
Carter Nelson
16 days ago

For our Wish Kiddo, Carter

$40.00
Carvell Matthews
16 days ago
$60.00
Angela McGuffin
17 days ago

Tye Dye Mile, Large 💙❤️💚💗🧡💛

$15.00
Deidre Reminder
17 days ago

1 sm/ 1 med on both shirts ..... #andsowerun #the24in24

$30.00
Julianne and Jennifer Knezovich
17 days ago

Tie dye mile and goal completed!! Wahoo!!

$30.00
Nate Podoll
17 days ago

Tie Dye Mile

$30.00
Stephanie zook
17 days ago

Tie dye shirt, medium please!

$15.00
Joe Fortunato
18 days ago

2 tie dye shirts lg and 2xl

$30.00
Uncle joe
18 days ago
$24.00
Jennifer Kirschstein
18 days ago

3 tie dye shirts 💕

$45.00
Tracy Morse
18 days ago

Tie Dye Mile, 2 larges

$30.00
Whitneyshianne Smith-Obhof
18 days ago

Tie Dye Mile

$15.00
Rachel Fabian
18 days ago

One Medium shirt please

$15.00
Jackie Bruner/Megan Tamburiello
18 days ago

2 large shirts

$30.00
Caitlin Kempton
18 days ago

Tie Dye Mile

$15.00
Tanya jenkin tie die shirt xl please
18 days ago
$15.00
Kristal Cowle / Brittany Rogers
18 days ago

2 Lg Tie Die Shirts please

$30.00
Justin Johns
18 days ago
$25.00
Beth Ryan
18 days ago

TyeDye Shirt- L

$15.00
Kayla Ryan
18 days ago

Tye dye shirt

$15.00
Maura Farkas
18 days ago

Tie dye mile!

$15.00
Rachael Zevnik
18 days ago

2 shirts - Tie Dye Mile

$30.00
Lisa Fox
18 days ago

Tie die mile - size small

$20.00
Diana Farkas
18 days ago

Tie Dye Mile

$15.00
Courtney Sheehy
18 days ago

3 tye dye shirts (ordered by Kennedy Fitzpatrick)

$45.00
Eugene
19 days ago
$24.00
Frank Ellenberger
20 days ago
$48.00
Amber Singer
20 days ago

Good luck Tim!

$25.00
Mal SanMarco
20 days ago
$24.00
Miss Nancy
20 days ago
$50.00
Sarah Salem
20 days ago

Good Luck!

$24.00
Cece, Lily and Andrew Kmiecik
20 days ago

We are so proud of you daddy, and we love you SO much! Good luck, we can't wait to watch and cheer you on!!

$48.00
Mitch
20 days ago
$48.00
Mike Hackette
25 days ago

You can do it!

$24.00
Darla Baumbick
28 days ago

Wishing you all the best and success!

$25.00
Carol Finley
1 month ago
$120.00
Lucius and Liam
1 month ago

We are so proud of you Uncle Timmy!!

$25.00
Anonymous
1 month ago
$16.00
Steve Wohl
1 month ago
$24.00
Felton Thomas
1 month ago
$120.00
Jean McFarren
1 month ago
$48.00
Tana Peckham
1 month ago

Best of Luck! I’ll be rooting for you!!

$48.00
Linda McKenzie
2 months ago
$10.00
Carrie Krenicky
2 months ago

Good Luck!!!

$50.00
Oliver Reyes
2 months ago

Go Team Skylar!

$50.00
Charlene Nauman
2 months ago

God bless team Skylar!

$240.00
Anonymous
2 months ago

"Always believe" - Ultimate Warrior

$35.00
The Ahrens Family
2 months ago

All our love!

$100.00
Timothy Diamond
2 months ago

Go Tim!

$120.00
Jeannine & Jaime Declet
2 months ago
$25.00
Jennifer Kirk
2 months ago

Team Skylar❤️

$25.00
Shannon Cope
2 months ago
$50.00
John Lang
2 months ago

Go Team Skylar!!

$50.00
John Skrtic
2 months ago

Good Luck

$50.00
Michael Barkacs
2 months ago
$24.00
Crystal Tancak
2 months ago
$50.00
Sherry Parker
3 months ago
Karen Kmiecik
3 months ago
$120.00