Why I'm Running
I have always felt an internal drive to help others. This special and unique opportunity allows me to answer that call and do my part for someone who needs the extra love, support, and inspiration. These individuals inspire me everyday- this race allows me to show them that.
About Team Tobias

Tobias is the youngest of our five children. At our 20-week ultrasound, we learned that he has half a heart (he has a very rare congenital heart defect, Double Inlet Left Ventricle, which means his right ventricle is almost nonexistent and his left ventricle was doing all of the work for his heart). At birth, Tobias did not need the first of 3 open heart surgeries he was to have for his defect, but he caught a cold when he was not quite 5 months old and almost did not survive. In the fall of 2017, he spent 40 days in the PICU between Akron Children’s Hospital and The Cleveland Clinic during which time he was intubated/sedated/paralyzed, his left lung collapsed twice, he had his first open heart surgery (the Glenn), and the day he was to come home he almost ended up on ECMO (life support) due to aspiration. He also developed chylothorax in his left lung before coming home again.

Despite that very rough time in Tobias’s life, he remained healthy until his second open heart surgery, which was during the height of Covid last summer. Tobias was 3 years old and had his heart catheterization and Fontan in the same week during June 2020 and came home just 5 days after surgery! He was readmitted 2 weeks later for a chest tube due to fluid in his right lung but was home again in 4 days. Since then, Tobias has shown us just how strong he is, and no one would never know he has been through so much unless they see his scars. Tobias should not need any other open-heart surgeries for a while but could someday require a heart transplant. He celebrated his 4th birthday this April and he cannot wait to go to school soon like his 3 older sisters and older brother. Tobias is full of energy, is always laughing, and he loves to play with his siblings and cousins — especially outside!

$825.00 of $700 goal

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Recent Donations

Ian Sloan
6 days ago

For a great cause

$75.00
Vivienne sloan
6 days ago
$50.00
Anonymous
7 days ago
$49.00
Anonymous Conor
7 days ago

You got this my love 💗 easy running!

$24.00
Tanner
8 days ago
$24.00
Anonymous
8 days ago
$25.00
Grandma and Pappy
9 days ago
$25.00
Rosboril Family
9 days ago
$20.00
Gene Rogers
17 days ago
$20.00
T-WID
18 days ago
$24.00
The Allis Family
1 month ago

You never cease to amaze, Amanda! You have such a big, caring heart. Good luck on the race and may God bless Tobias!

$30.00
Mom & Dad
1 month ago
$45.00
Ma and Pa from Slip
1 month ago
$25.00
Suppel Family
1 month ago
$25.00
Strouse Family (Texas)
2 months ago
$100.00
Amber Keane
2 months ago
$24.00
Piaggesi Family
2 months ago
$15.00
Team Tobias Donation Bingo Board Donators
3 months ago

Thank you to everyone who filled the Bingo Board and beyond to donate to Team Tobias!

$171.00
Sarah Allis
3 months ago
$24.00