Why I'm Running

This is my fourth time running The 24 in 24. It’s such an amazing event. I truly love it. It pushes me to my limits but that’s nothing compared to what our wish kids face every day. I will be uncomfortable for 24 hours to give these kids one smile! Over and over!


About Team Trinity

Trinity had a rough start in life. She spent the first 2.5 months at the Cleveland Clinic alone with only the doctors and nurses caring for her in the absence of her biological parents. She was born prematurely and along with the many issues that preemies face she suffered grade 3 and grade 4 brain bleeding. As a result of the brain bleeds and multiple cysts on her brain she developed hydrocephalus. Hydrocephalus is a condition where too much cerebrospinal fluid builds up in the brain's ventricles. As the fluid increases it puts pressure on the brain and then becomes life threatening. It is a lifelong condition and there is no cure. Treatment is brain surgery to relieve pressure by rerouting the excess fluid through a device called a shunt. Trinity's shunt runs from her brain, behind her ear, and down into her abdomen. She has had 4 brain surgeries to date and will require more in the future. Trinity also has a rare chromosome 17p13.3 microdeletion that has resulted in global delays, hypotonia, an ASD heart defect, and several other diagnoses. She has an amazing team of doctors, surgeons, therapists, and family support in place to help her reach her fullest potential.

Trinity is an affectionate free spirited 4-year-old that has a passion for life. She loves swimming, camping, and all things nature! She is passionate about animals and wants to rescue every creature that she comes across. She loves to dress up and dance to music (her favorite song is bicycle race by Queen). When she grows up, she wants to be a doctor so she can help others. I thank God every day for bringing Trinity into our lives. We watch her overcome things that most people will fortunately never have to experience during an entire lifetime. Even when Trinity is struggling, she shows strength and determination to keep overcoming. She's an inspiration and a reminder to make the best of every day.

$1,554.00 of $1500 goal

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Recent Donations

The ginger association
5 days ago

You got this

$100.00
Hartman Family!
5 days ago

You all are amazing…esp the kiddos!! ❤️💙

$20.00
Dawn
5 days ago

You got this girl!! God bless all these sweet children!!

$50.00
Alicia
5 days ago
$24.00
Jenny Pelko
5 days ago

So proud of you Julie!

$25.00
Terri Davis
6 days ago

Good luck Julie!!!!!

$50.00
The Arnolds
7 days ago
$50.00
Susie Rose
7 days ago

Good luck Julie!

$50.00
Everly
7 days ago

Good Luck Eeata! I love you!

$25.00
Beth Mayer
11 days ago
$50.00
Kellys
12 days ago
$100.00
Brenda N.
20 days ago
$100.00
Zhanna
21 days ago
$50.00
Elyse Tritschler
24 days ago

This is amazing. Great job Julie!

$50.00
Mistie Radak
26 days ago
$25.00
Matt Wisniewski
28 days ago
$25.00
Jenna Luketic
28 days ago

Good luck Julie!

$35.00
Brenda
28 days ago
$25.00
Niki Slapnicker
2 months ago
$89.00
Chad Warren
2 months ago

Go get em’ Jules!

$48.00
Caroline Drotar
2 months ago

Can’t wait to run a few miles with you!!

$25.00
Bissonnette Family
3 months ago

Do it girl!! Have fun!!

$100.00
Tami K
3 months ago

Run like a girl!!! 💪 #girlpowerforTrinity

$120.00
Dina
3 months ago

You go girl

$50.00
Sally Korbel
3 months ago
$150.00
Dwyer Family
3 months ago

Good luck!!!! We will be around to chat again if you need it ❤️❤️

$48.00
Ed Ely
3 months ago

Way to go, Julie! Such a great cause.

$40.00