Why I'm Running
Three letters...R.O.B. He is my son, my inspiration and a Wish Kid. I am always in awe of his bravery and fight. So, I will continue to run and fundraise for these kids that can't. We are proud recipients of the amazing work A Special Wish - Cleveland has done for us and this is a way for us to give back.
About Team Zaylen

Zaylen was born at 34 weeks and weighing 4lb 7 oz. From birth he had an uphill battle as he couldn’t keep his temperatures and blood sugars up. Zaylen spent 2 weeks in the hospital after he was born getting blood sugars checks every 4 hours while on IV antibiotics for rule out sepsis. Once his sugars stabilized, we were sent home. Little did our family know how soon we would be returning. At 4 months old an incidental finding showed Zaylen had enlarged ventricles and he was diagnosed with non-obstructive hydrocephalus. While hospitalized and getting worked up for rule out seizures at 6 months, an exploratory scope diagnosed Zaylen with a laryngeal cleft. They injected Botox into the cleft to decrease the chocking episodes and Zaylen was started on a thick liquid/pureed diet to also help with decreasing the choking and aspiration episodes. Zaylen started speech therapy we were so happy with all his progress.

At 2 years old Zaylen had his first brain surgery and did amazing. He has a ETV with a reservoir. He was admitted later in the year to have his laryngeal cleft stitched closed. After his PICU stay he blossomed into a happy toddler. Unfortunately, a few months after turned he 2.5, he had to be hospitalized for vomiting. A simple observation stay led to us fighting for our son’s life. He went into septic shock, had to intubated, and eventually was diagnosed with Enterovirus D71. This rare brain virus led to 2 PICU stays and an emergency brain surgery. Zaylen was diagnosed with both obstructive and non-obstructive hydrocephalus and had to have a shunt placed. After this virus rattled his little body, he was left unable to walk, talk, or eat. A long-term tube feed was placed and Zaylen spent 2 months in the hospital learning all his developmental milestones. We went to children’s rehab and Zaylen happily rode around in a wheelchair while relearning how to crawl, walk, talk, and eat. After 1 year of speech, occupational, and physical therapy Zaylen had regained most of developmental milestones. After Zaylen’s third birthday, he continued to get sick and had to be hospitalized for metapneumovirus. He is followed by immunology, and they are ruling out SAD (specific antibody deficiency). His labs still show multiple food allergies- eggs, tree nuts, and shellfish. However, his immune system is doing much better. Zaylen is extremely friendly, loving, and full of compassion. No matter what obstacles he has to overcome, his resilience and will to dedication to get better always ends on top!

$6,459.00 of $5000 goal

Share this Challenger:


Recent Donations

Megan Weiss $50.00
Missy Stamford (Addie's Aunt)

#addiestrong

$25.00
Heather Onorati
11 days ago

Great job Beth! ❤️

Weber Family
11 days ago

Hang in there! You are half way there!! It’s such a great cause!!

Katie and Matt Bittner
13 days ago

Go get 'em, Beth!

$250.00
Cindy Stull
13 days ago
$200.00
Heather
15 days ago

AMAZING job!!!! 😍

Team Zaylen
15 days ago

Thank you for running in Zaylen's name. From his many supporters.

$25.00
Julie Skinner
19 days ago

You are a rockstar! Go Beth!

Dave and Christine Uhrin
19 days ago
$50.00
Cristin and Andy Lukcso
19 days ago
$50.00
Soltesz family
19 days ago
$100.00
Pam Onacila
19 days ago
$50.00
The Burichin Family
19 days ago
$100.00
Karen Patterson
20 days ago

You are amazing, Beth!!!

$100.00
Jay and Christina Schager
20 days ago
$50.00
Lisa Krajeski
20 days ago
$50.00
Megan (LaCorte) Grant
20 days ago
$24.00
Chris and Mary LaCorte
20 days ago
$30.00
Susan Giagtzoglou
21 days ago
$50.00
Sylvia andDave Pasz
22 days ago

You are amazing Beth !

$120.00
Wering Family
22 days ago

Always so proud of you! We love you!

$75.00
The Florentz Family
22 days ago

Run for us all!

$100.00
Tracy Godek
24 days ago

I believe in YOU!!! You got this!

The Lam Family
25 days ago

You are so AWESOME Beth! I love that you do this every single year and I will continue to support you every year you do this for those AMAZING kiddos!

$75.00
Hallie and David Hakaim
25 days ago
$50.00
Kelly Chael
26 days ago
$50.00
Mary Teconchuk
28 days ago

YOU are so strong and brave and I admire you every.single.day.

$100.00
Natalie Lipinski
29 days ago

You are an inspiration!

$24.00
Mike and Amanda Dilley
29 days ago
$50.00
Tab Property Enhancement
1 month ago
$550.00
The Healeys
1 month ago

You are such an inspiration! Run fast!

$50.00
Stephen and LeeAnn Baker
1 month ago

Good luck, Beth!!

$24.00
Kinnear Family
1 month ago
$30.00
K Baum
1 month ago

Excited for you, Inspired by you, Hopeful for those you do this for.

Bill, Meg and Otto
1 month ago

Robert’s Mom is the BOMB!

Dan and Mindy Delfino
1 month ago
$75.00
Charlie and Chris Gibson
1 month ago
$50.00
Leanne G
1 month ago

Cheering you on!

$15.00
Aunt B & Butchie
1 month ago
$50.00
Gina Brzozowski
1 month ago

🥰

$25.00
Rob and Layla Gibson
1 month ago

WAY TO GO MOM!! We Love you!

$50.00
Catherine R Shuster
1 month ago

Beth, you are certainly paying it forward. Have a good run. We are praying for you.

$48.00
The Howe Family
1 month ago

Thank you for inspiring us!

$25.00
Kelly and Mike Burnett
1 month ago

We love you and will always support this amazing cause!!!

$50.00
Jessica Constantine
1 month ago
$50.00
Kelly Guerrieri
1 month ago
$50.00
Rob and Layla Gibson
1 month ago
$100.00
The Henry Family
1 month ago
$24.00
Liam Waldron
1 month ago

Go for it! I love my basement.

Peggy Baum
1 month ago
$25.00
The Kenick family
1 month ago
$50.00
Holly Morgan
1 month ago
$50.00
Karen Patterson
1 month ago

Go Beth and Team Zaylen!

$100.00
Bonnie Taylor
1 month ago
$24.00
Patrice Alberty
1 month ago

You go Beth great work you doGod Bless

$240.00
Bob and Andrea Kalfas
1 month ago

Donating is the easy part the 24 miles in 24 hours is the tuff part but I have all the confidence in you Beth

$250.00
Dave & Judy Sabol
2 months ago

Go Beth! Thanks to A Special Wish for all they do for these kids!

$100.00
Mike and Jan
2 months ago

Run like a girl and see if others can keep up!

$240.00
Adele calmer
2 months ago

For little warrior zaylen!

$20.00
The Calmers
2 months ago

Happy to support Team Zaylen! Sending love & luck for a great race!

$50.00
Henley Gibson
2 months ago

In honor of all wish kids!

$100.00
Anna Shaw
2 months ago
Jen Anderson
3 months ago
$24.00
Lauren Rudman
3 months ago

Go get em! 👏🏻💪🏻

$24.00
Kellye
3 months ago
$100.00
The Bukers
3 months ago
$50.00
Anonymous
3 months ago
$48.00
Casey
3 months ago
$100.00
The Piskur Family
3 months ago
$75.00
Anonymous
3 months ago
$120.00
Justin, Alissa, Lillian, Tristan, Graham, Fiona Gibson
3 months ago

Keep rockin’ out, Beth. We love seeing you do this every year.

$120.00
Hayley Munroe
3 months ago

Always inspired by you!

$75.00