Why I'm Running

I’m coming back for a third time running for the beautiful children who live right here in Northeast Ohio. They’ve been dealt cards out of their control and it’s just never fair. There is no pain or fear that I will go through during these 24hrs that exceeds what our wish kids and their families deal with on a daily basis. Nothing else matters other than making their wish come true!


About Team Zaylen

Zaylen was born at 34 weeks and weighing 4lb 7 oz. From birth he had an uphill battle as he couldn’t keep his temperatures and blood sugars up. Zaylen spent 2 weeks in the hospital after he was born getting blood sugars checks every 4 hours while on IV antibiotics for rule out sepsis. Once his sugars stabilized, we were sent home. Little did our family know how soon we would be returning. At 4 months old an incidental finding showed Zaylen had enlarged ventricles and he was diagnosed with non-obstructive hydrocephalus. While hospitalized and getting worked up for rule out seizures at 6 months, an exploratory scope diagnosed Zaylen with a laryngeal cleft. They injected Botox into the cleft to decrease the chocking episodes and Zaylen was started on a thick liquid/pureed diet to also help with decreasing the choking and aspiration episodes. Zaylen started speech therapy we were so happy with all his progress.

At 2 years old Zaylen had his first brain surgery and did amazing. He has a ETV with a reservoir. He was admitted later in the year to have his laryngeal cleft stitched closed. After his PICU stay he blossomed into a happy toddler. Unfortunately, a few months after turned he 2.5, he had to be hospitalized for vomiting. A simple observation stay led to us fighting for our son’s life. He went into septic shock, had to intubated, and eventually was diagnosed with Enterovirus D71. This rare brain virus led to 2 PICU stays and an emergency brain surgery. Zaylen was diagnosed with both obstructive and non-obstructive hydrocephalus and had to have a shunt placed. After this virus rattled his little body, he was left unable to walk, talk, or eat. A long-term tube feed was placed and Zaylen spent 2 months in the hospital learning all his developmental milestones. We went to children’s rehab and Zaylen happily rode around in a wheelchair while relearning how to crawl, walk, talk, and eat. After 1 year of speech, occupational, and physical therapy Zaylen had regained most of developmental milestones. After Zaylen’s third birthday, he continued to get sick and had to be hospitalized for metapneumovirus. He is followed by immunology, and they are ruling out SAD (specific antibody deficiency). His labs still show multiple food allergies- eggs, tree nuts, and shellfish. However, his immune system is doing much better. Zaylen is extremely friendly, loving, and full of compassion. No matter what obstacles he has to overcome, his resilience and will to dedication to get better always ends on top!

$2,859.00 of $2000 goal

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Recent Donations

Megan Weiss $50.00
Dawn
9 days ago

<3

$24.00
Jen B
11 days ago

So awesome!!

$10.00
Ashley Jusko
11 days ago
$12.00
Chiro CLE
11 days ago

GO RACHAEL!!!!

$24.00
Hannah Hedrick
11 days ago

Thank you!

$46.00
Brian Gorham
11 days ago
$25.00
Ashley Kirk
12 days ago

Go Rachael!!! You are amazing!!

$24.00
Crystal & Isaiah McGuffin
12 days ago
$25.00
Martha Waller
12 days ago

♥️♥️♥️

$24.00
olivia hayward’s
12 days ago

good luck mrs zebra love you 💕💕

$20.00
Sara Lukacs
12 days ago
$25.00
Valentina Munaretto
12 days ago

❤️

$10.00
Jaiden and Mya
12 days ago
$20.00
Addison and Brian Siedler
12 days ago
$15.00
Lea Iacianci
12 days ago
$50.00
Margot Ulle
12 days ago

The Ulle family is inspired by your dedication. <3 Have a fabulous 24 on 24!!!

$50.00
Mailyn
12 days ago

💙

$10.00
Matthew Robinson
12 days ago

For Zaylen

$15.00
Olivia Vittum aka O’Diggity
13 days ago

You’re awesome!!

$100.00
Joe Frascarelli
13 days ago

Run Rachael Run!!!

$75.00
Shawn and Becky Shady
13 days ago
$50.00
Rutkowski’s
13 days ago
$24.00
Kristi Welch
14 days ago
$24.00
Hannah Rutkowski
14 days ago

Thank you Hannah B!

$10.00
Carly Alexander
14 days ago
$25.00
Kelsey Dugger
14 days ago

Will be thinking of you and cheering you on!

$25.00
Cara Frisby
15 days ago
$25.00
Team Zaylen
15 days ago

Thank you for running in Zaylen's name. From his many supporters.

$25.00
Abby Zevnik
17 days ago

Go mom!

$40.00
Melissa Bogo
18 days ago

Thank you for supporting the blanket auction and being rockstar challenger!

$49.00
Janice Zweigart
19 days ago
$120.00
Gina Martucci
21 days ago
$20.00
Leaya
21 days ago
$25.00
Bill Waldron
27 days ago
$120.00
The Zupancic’s
1 month ago
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Karina and Matt McLuckey
1 month ago
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Ashley Dotson
1 month ago
$50.00
Diane Unites
1 month ago
$25.00
Kelly Marino
1 month ago
$25.00
Linda Robinson
1 month ago

So proud of you. Prayers for Zaylen.

$30.00
Kayla Munaretto
1 month ago
$30.00
Anonymous
2 months ago
Elaine Wolf
2 months ago
$30.00
Denise Trivisonno
2 months ago

Your commitment is unwavering!! You go girl!!

$25.00
Michelle Fall
2 months ago
$20.00
Joe, Robyn, Ethan & Shaun Hensch
2 months ago

“Only those who risk going too far, can possibly find out how far one can go.”— T.S. Elliot

$100.00
Melissa McCord
2 months ago
$50.00
Jill Faiella
2 months ago
$30.00
Rob F
2 months ago
Jerry Hazzard
3 months ago

💪💪🥊🥊

$50.00
Debra Jasinski
3 months ago
$25.00
Alvin McGuffin
3 months ago

Team Zaylen

$120.00
Cogan Family
3 months ago
$50.00
Mom
3 months ago

So proud of your dedication to this incredible cause. In memory of those we’ve lost and to support those who still fight ❤️

$100.00
Derek Hawranko & Katilin Slaper-Hawranko
3 months ago
$50.00
Ashley Pearson
3 months ago
$20.00
Karen Zook
3 months ago

Prayers for this brave, sweet boy!

$25.00
James sheahan
3 months ago
$120.00
The Hejduk's
3 months ago
$25.00
Kim White
3 months ago
$50.00
Todd Pruden
3 months ago

Go Rach Go! You're the best!

$120.00
Tina Ward
3 months ago
$50.00
Crystal Barnes
3 months ago
$30.00
Dawn Powell
3 months ago
$50.00
Megan Wolf
3 months ago

Amazing work!!!

$48.00
Elizabeth Kalister
3 months ago

Rachael, you are amazing! ❤️

$50.00
Mark & Lisa Fornes
3 months ago
$50.00