Why I'm Running

I’m coming back for a third time running for the beautiful children who live right here in Northeast Ohio. They’ve been dealt cards out of their control and it’s just never fair. There is no pain or fear that I will go through during these 24hrs that exceeds what our wish kids and their families deal with on a daily basis. Nothing else matters other than making their wish come true!


About Team Zaylen

Zaylen was born at 34 weeks and weighing 4lb 7 oz. From birth he had an uphill battle as he couldn’t keep his temperatures and blood sugars up. Zaylen spent 2 weeks in the hospital after he was born getting blood sugars checks every 4 hours while on IV antibiotics for rule out sepsis. Once his sugars stabilized, we were sent home. Little did our family know how soon we would be returning. At 4 months old an incidental finding showed Zaylen had enlarged ventricles and he was diagnosed with non-obstructive hydrocephalus. While hospitalized and getting worked up for rule out seizures at 6 months, an exploratory scope diagnosed Zaylen with a laryngeal cleft. They injected Botox into the cleft to decrease the chocking episodes and Zaylen was started on a thick liquid/pureed diet to also help with decreasing the choking and aspiration episodes. Zaylen started speech therapy we were so happy with all his progress.

At 2 years old Zaylen had his first brain surgery and did amazing. He has a ETV with a reservoir. He was admitted later in the year to have his laryngeal cleft stitched closed. After his PICU stay he blossomed into a happy toddler. Unfortunately, a few months after turned he 2.5, he had to be hospitalized for vomiting. A simple observation stay led to us fighting for our son’s life. He went into septic shock, had to intubated, and eventually was diagnosed with Enterovirus D71. This rare brain virus led to 2 PICU stays and an emergency brain surgery. Zaylen was diagnosed with both obstructive and non-obstructive hydrocephalus and had to have a shunt placed. After this virus rattled his little body, he was left unable to walk, talk, or eat. A long-term tube feed was placed and Zaylen spent 2 months in the hospital learning all his developmental milestones. We went to children’s rehab and Zaylen happily rode around in a wheelchair while relearning how to crawl, walk, talk, and eat. After 1 year of speech, occupational, and physical therapy Zaylen had regained most of developmental milestones. After Zaylen’s third birthday, he continued to get sick and had to be hospitalized for metapneumovirus. He is followed by immunology, and they are ruling out SAD (specific antibody deficiency). His labs still show multiple food allergies- eggs, tree nuts, and shellfish. However, his immune system is doing much better. Zaylen is extremely friendly, loving, and full of compassion. No matter what obstacles he has to overcome, his resilience and will to dedication to get better always ends on top!

$1,133.00 of $2000 goal

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Recent Donations

Megan Weiss $50.00
Rob F
6 days ago
Jerry Hazzard
10 days ago

💪💪🥊🥊

$50.00
Debra Jasinski
11 days ago
$25.00
Alvin McGuffin
11 days ago

Team Zaylen

$120.00
Cogan Family
11 days ago
$50.00
Mom
11 days ago

So proud of your dedication to this incredible cause. In memory of those we’ve lost and to support those who still fight ❤️

$100.00
Derek Hawranko & Katilin Slaper-Hawranko
11 days ago
$50.00
Ashley Pearson
11 days ago
$20.00
Karen Zook
11 days ago

Prayers for this brave, sweet boy!

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James sheahan
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The Hejduk's
13 days ago
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Kim White
14 days ago
$50.00
Todd Pruden
15 days ago

Go Rach Go! You're the best!

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Tina Ward
15 days ago
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Crystal Barnes
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$30.00
Dawn Powell
15 days ago
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Megan Wolf
18 days ago

Amazing work!!!

$48.00
Elizabeth Kalister
18 days ago

Rachael, you are amazing! ❤️

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Mark & Lisa Fornes
18 days ago
$50.00