Life changed at the 20 week anatomy scan for our first child, Vivian. We found out that she had Heterotaxy and multiple congenital heart diseases. We were told her chance of survival was grim. They gave us only a 5% chance to survive to the age of 1, and only a 1% chance to survive to 5.

Vivian has defied all the odds and will be 9 in October! We are so lucky! She has had 4 open heart surgeries, 16 heart catherizations, 2 bowel surgeries, and countless tests and procedures. Vivian is a bright, imaginative, energetic girl who loves roller coasters (don’t tell her doctors!). She loves to dance and play with her two sisters. She has an infectious laugh and a smile that brightens your day.